TL; DR: We hope everyone had a great holiday weekend; we’re doing our bests to stay cool out here. (Grateful for AC!) On track for treatment on Friday, will get the Neulasta patch this time to hopefully prevent the severe neutropenia. My eyebrows and eyelashes are nearly fully gone and so I’m fighting a battle […]

TL;DR: I spent this week in the hospital recovering from sever neutropenia/neutropenic fever. All is ok now! My room did have a lovely view of PV. I’m very glad to be home and that it all went so well. I am on track for my next treatment next Friday. Thank you all for being part

First off, thank you to all of you for being so patient with the time between these posts. 🙂 We had some wonderful time “off” and it was just what we needed! TL; DR: Treatment occurred last week albeit shifted by a day. Still a little ice, but doable. Side effects a bit more extended

TL; DR: Last weekly treatment is done (no more ice!), treatment delayed by a day, but all ok. Taking this coming week off to mentally recharge (very excited). 4 more chemo/immunotherapy treatments left; 1st surgery likely late Nov/early Dec. Continued thanks and gratefulness to you all for everything! My 12th and last weekly treatment is

TL; DR: Great news from the doctors, tumor is not findable via physical exam and looks quite different on ultrasound. I only have 1 more treatment left in the 1st chemo regimen. New regimen coming, likely tougher, but we’ll get there. I am physically feeling good but recovery times are longer; mentally things are harder.

I figured out that something was up with the auto-emailer on our website last week as it seems the last two posts didn’t go out via email. I made an update to the emailer and so this post is mostly about testing/posting to see if what I adjusted fixed it. (Because I mostly have no

TL; DR Version: I got treatment today! I am almost 3/4 through the first round of chemo/immunotherapy. Numbers were all good this week on both draws. Be sure to rest and take care of yourself, I’m doing more learning here (nothing bad happened it was a good learning experience. FOMO is real.). My eyebrows and

Just a quick note, thank you all for the bone marrow pep talks, prayers, and healing thoughts – they worked! I got 3 rounds of Zarxio last week instead of just one and I am thrilled to say that my numbers are in treatment range for tomorrow so I will be able to get treatment.

TL; DR version: Last weekend was rough but doable. Same schedule drama as last week. 🙂 No treatment this week because my neutrophils are still low, even after the injection. Path forward: 2 more injections (one today), wait, hope for better numbers on Tuesday and then hopefully treatment next week. (My bone marrow needs a

Yesterday, by what feels like the skin of my teeth, I got 3 drug treatment #3, overall treatment #7. I’ll explain. Only 1 more of these particular treatments to go. Woohoo! In case this is too long, the TL;DR version is: I did get treatment despite some last minute injections and down to the wire