TL;DR: I spent this week in the hospital recovering from sever neutropenia/neutropenic fever. All is ok now! My room did have a lovely view of PV. I’m very glad to be home and that it all went so well. I am on track for my next treatment next Friday. Thank you all for being part […]

First off, thank you to all of you for being so patient with the time between these posts. 🙂 We had some wonderful time “off” and it was just what we needed! TL; DR: Treatment occurred last week albeit shifted by a day. Still a little ice, but doable. Side effects a bit more extended

TL; DR: Last weekly treatment is done (no more ice!), treatment delayed by a day, but all ok. Taking this coming week off to mentally recharge (very excited). 4 more chemo/immunotherapy treatments left; 1st surgery likely late Nov/early Dec. Continued thanks and gratefulness to you all for everything! My 12th and last weekly treatment is

TL; DR: Great news from the doctors, tumor is not findable via physical exam and looks quite different on ultrasound. I only have 1 more treatment left in the 1st chemo regimen. New regimen coming, likely tougher, but we’ll get there. I am physically feeling good but recovery times are longer; mentally things are harder.

I figured out that something was up with the auto-emailer on our website last week as it seems the last two posts didn’t go out via email. I made an update to the emailer and so this post is mostly about testing/posting to see if what I adjusted fixed it. (Because I mostly have no

TL; DR Version: I got treatment today! I am almost 3/4 through the first round of chemo/immunotherapy. Numbers were all good this week on both draws. Be sure to rest and take care of yourself, I’m doing more learning here (nothing bad happened it was a good learning experience. FOMO is real.). My eyebrows and

Just a quick note, thank you all for the bone marrow pep talks, prayers, and healing thoughts – they worked! I got 3 rounds of Zarxio last week instead of just one and I am thrilled to say that my numbers are in treatment range for tomorrow so I will be able to get treatment.

TL; DR version: Last weekend was rough but doable. Same schedule drama as last week. 🙂 No treatment this week because my neutrophils are still low, even after the injection. Path forward: 2 more injections (one today), wait, hope for better numbers on Tuesday and then hopefully treatment next week. (My bone marrow needs a

Yesterday, by what feels like the skin of my teeth, I got 3 drug treatment #3, overall treatment #7. I’ll explain. Only 1 more of these particular treatments to go. Woohoo! In case this is too long, the TL;DR version is: I did get treatment despite some last minute injections and down to the wire

Well, I thought I was going to get treatment today. Unfortunately, that ended up being a no. My neutrophils were fine, but my platelets were not…they are too low. It looks like my treatment will be postponed until next week while my body recovers. I guess I have another number to watch for in the